Little's Life

Little's Life

Sunday, August 28, 2011

Sunday, SUNday, SUNDAY!

My mom wanted a flyer (flier?) to mail out to friends and family she thought might like to donate on Andrew's behalf, so this is what I made for her.  You'll have to click on it to see it full sized. Next year we'll have more time and I'll make a much better one that we can send out as a post card.    So anyway, this is just your friendly reminder that if you would like to help fund research for a treatment for Andrew, tune in on Sunday and pick up that phone!!!!!!!!!

Saturday, August 13, 2011

A pbbbbbbbbbbbt and a yay

First off, eww.  There it is in writing. 

Just click on it to view it in a readable size.

It's quite sobering to see it on paper. But knowing where Andrew's mutation lies and in what form will help pinpoint what clinical trials he will be eligible for and what therapies will be of use to him one day (once they are discovered). So far, the only treatment out there is Prednisone, a thank you. The last thing I need are 'roid rages from a teenager in a wheel chair.

So on to the "yay" portion of today's blog ~ actually there are two! The first is that Andrew balanced in a standing position for a few seconds today!!!!

The second is that he is finally strong enough to pull himself up to stand!!!!!!!!!!!!!!!! He turns 19 months old in 2 days, to put into perspective to you just how relieved we are that this happened. He was on the floor playing with his toys and I was completely transfixed on the awesomely bad 1980 movie, Xanadu, when I heard him asking me for his blocks. His blocks that are inside the toy box. His blocks that are inside the toy box that he cannot see into unless he is standing. I actually had to ask Sam if he came in the room and helped Andrew up. So I grabbed the FlipCam and set him back down on his bum, so this is actually his second pull-up since neither of us witnessed the 1st one (darn it).

So, twas a very big day for my Little.  And yeah, I said "twas".
And here's a third video just bc I think it's uber cute.